Hentet fra aboutmcfs.org:
«Hot News! Patiënts Congres by De Meirler and Roelants on XMRV (22 sept.2010)
Because I’m tired it’s difficult to give you an impression. But I will give it a try. I want to apologize in advance for al the vocabulary mistakes I make in writing and translating.
DML gave a short presentation with the latest news on XMRV, data from the Workshop in Washington. Data we all know by now, because this forum is faster than the light. More interesting is ofcourse his personal feeling about what happened over there and therefor I will quote him on several subjects.
He mentioned the Lombardi study and the fact that in less then one month there were some negative studies published.
«It’s impossible to do good research in less then a month».
About the Blomberg study from Sweden, where they couldn’t find any XMRV, he said the following;
«We delivered 132 bloodsamples and Blomberg did find two XMRV+, but he forgot to mention them in his study. Speaking about politics».
The patiënts chosen for the Ampligenstudy were badly chosen. (33%XMRV+)
Blood from relatives tested 50% XMRV+
Lots of patiënts have children with autism
«There is a lot more to come», he stated seriously
He told us that in a personal communication with Cheney, Cheney said that he had good results in treating the patiënts with Artusenate, a NFKappaB inhibitor.
He couldn’t tell us anything about the other studies concerning the relation between XMRV and other disseases, but he confirmed ten diseases already found evidence (XMRV+ patients)
He talked about Singh and the 4 medications that has proven their effectivity. Ragrevir, AZT, Tenofovir and Zidovodine. » This combination is not tried in patiënts yet, but will possibly dangereous in regard to resistancy».
«The virus is stable. Because of the problems with the viral load that seems to be shifting anti-retrovirals are not usefull». (Here I actually nodded my head and nearly fell of my chair)
The Alter/Lo study is being replicated in Belgium and for the now he could tell us that 50% tested MLV+)
He stressed the importance of the journalist/patiëntgroup at the workshop putting pressure on the virologists for clinical trials. (personally I find that paradoxical with his earlier statement that anti-retrovirals are not usefull, nevertheless I’m philosopher and a critical mind)
DML thinks that the symptoms play a bigger role in the disease than the virus at a given moment.
When I ask him if al these treatments to get rid of the symptoms (leaky gut etc..) aren’t a waste because the virus self remains in place and active, he answers that it is a cirkle. (Personally I don’t believe that)
Somebody in the audience asks him if the disease is sexually transferable?
«They have asked me not to show the data yet, but yes it is. The study will be published soon!»
Urinetest was a take away H2S test. Mine coloured like Coca-Cola
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