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Tag Archives: Judy Mikovits

14.01: Radiointervju med transkribering av Dr. Judy Mikovits

Transkribering av intervjuet hentet fra XMRV Global Actions Facebookside:

«Interviewer: 

A recently discovered virus called XMRV has been associated with two very different medical conditions.

Dr. Mikovits: 

We’ve identified a new family of human retroviruses, known as the gammaretroviruses, of which XMRV is the first to be isolated, which we did last year, and those are implicated now in CFS, a neurological disease, as well as the original discovery implicated them as playing a role in prostate cancer.

Interviewer: 

That’s Judy Mikovits… she explains that this human retrovirus, only the 3rd such virus already identified, seems to amplify the effects of disease.  She adds that it may also come to be used as a biological marker for the early identification of those men most at risk for aggressive prostate cancers.

Dr. Mikovits: 

The virus is present in the most aggressive types of prostate cancer.  Right now, we take a “watch and wait” attitude because we don’t know in which person the cancer will kill them, and in which the cancer will be controlled by the immune system.  But if this is a biomarker of the most aggressive cancer, then we can have a better treatment protocol and save millions of dollars in public health by not treating people who don’t need treatment as early, and really change the way we treat prostate cancer.

Association with CFS

… We have associated XMRV with a significant portion of the cohorts throughout America, and the group of Dr Lo and Alter at the FDA and NIH confirmed that on the East Coast.  There have been several groups also in Spain, Norway and Belgium where we have identified the virus, very high numbers of CFS.

Interviewer: 

… Recent research suggests that 4% or more of all Americans may be infected with the retrovirus, which is called that because it reverses a section of DNA.  Mikovits says those carriers can be identified with a series of tests.

Dr. Mikovits

We don’t know where inside the body right now is the major reservoir of the virus, where it’s hiding.  So we test by culturing the virus out of every patient’s blood.  We also look for the immune response, so if you’re making the antibodies to the retrovirus, then you are infected with the retrovirus.

Interviewer

But when there is a positive test, she adds, the infection is there to stay. 

Dr. Mikovits: 

The DNA of the virus is integrated into your cells for the life of those cells, so it is a lifelong infection.

Interviewer: 

Because XMRV was only recently identified and isolated, its possible effects and associations are quite controversial, and they are only beginning to be studied.  New areas of inquiry include possible associations with Lyme Disease, breast cancer, and other cancers.»

Dr. Mikovits holder foredrag om XMRV 17.01 i Santa Rosa

Som jeg tidligere har skrevet om sier ryktene at Dr. Mikovits vil legge frem resultater av retroviralbehandling av XMRV-positive ME pasienter på dette foredraget. Les det HER.

Utfra informasjon hentet fra Bohemian.com kan det virke som om hun vil rydde opp i kontroversen som har rådet den siste tiden:

«Like medical theatrics straight out of a Michael Crichton novel, certain groups have challenged Mikovits’ claim that strong associations can be made between XMRV and cancer or other neuroimmune diseases. A study in England purported to find none of the retrovirus in blood samples, a claim later discredited when it was revealed that the researchers had used an entirely different method of testing from the original.

«[Mikovit’s paper] really upset a lot of apple carts,» says Klaber. «There were people with cherished beliefs about the cause of chronic fatigue were not happy. Ego, greed, prestige and power is as rampant in academia as anywhere else.»

Klaber encourages anyone suffering from chronic or debilitating illness to attend the public talk. «Significant numbers of people have chronic illness and just can’t feel happy,» he says. «XMRV is obviously playing a role for many of these people.»»

Les det HER

Les det på norsk med Google Translater HER

Flyer til seminaret HER

Svensk mediedekning etter ME-seminar i Gøteborg torsdag 2. desember

Hentet fra dagensmedisin.se:

«Det krävs mycket känsliga metoder för att detektera XMRV i blodet och i flera av de aktuella studierna har man bara använt en enda metod, medan vi själva använt flera. Dessutom kan det ha varit så att patienterna i själva verket inte hade kroniskt trötthetssyndrom enligt de kriterier som vi använt, sade Judy Mikovits vid ett symposium i dag på stämman.

Hon hänvisade också till en studie från en annan forskargrupp som funnit ett relativt likartat samband som hennes egen grupp gjort.

─ Och enligt preliminära data från ett brittiskt material ser vi ungefär samma resultat som i vår ursprungliga studie, sade Judy Mikovits.»

Les hele artikkelen HER

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Hentet fra dn.se og unt.se og svt.se

«Om 5-10 år kan vi ha vaccin, tror Jonas Blomberg, professor i klinisk virologi vid Uppsala universitet.»

«Om sjukdomen är virusorsakad betyder det att den kan vara smittsam. Om den smittar och i så fall hur är oklart men Jonas Blomberg nämner saliv, blod, bröstmjölk och kondomlösa samlag som tänkbara vägar.

– Patienterna sitter i en svår sits nu. Det är förstås av yttersta vikt för dem att veta om sjukdomen smittar eller ej, säger Jonas Blomberg.»

Les hele artikkelen HER

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Expressen.se la jeg inn i går og link til til den bloggposten er HER

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Hentet fra gp.se:

«Ungefär på samma sätt brukar patienter över hela världen beskriva upptakten till den kroniska sjukdomen – en häftig och/eller långdragen infektion. I många år har forskare letat efter orsaken till det man numera vet är en utmattning på cellnivå. Kroppens energifabriker, mitokondrierna, varvar ner och orkar inte producera tillräckligt med energi. Någonting har allvarligt sargat immunförsvaret.

För ganska exakt ett år sedan skrev amerikanska forskare i den vetenskapliga tidskriften Science om sin upptäckt. De hade funnit en koppling mellan ett humant retrovirus och personer med kroniskt trötthetssyndrom, ME (myalgisk encefalomyelit).»

Les hele artikkelen HER

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Dukker det opp mere mediedekning fra Sverige vil jeg fylle inn fortløpende!

28.11 Newsweek: En god artikkel om bla ME, XMRV og Judy Mikovits

Hentet fra newsweek.com:

«What patients want is scientific validation. In the study published last year, researchers led by Judy Mikovits, of the Whittemore Peterson Institute (WPI) in Reno, Nev., identified XMRV, an infectious retrovirus in the same family as the AIDS virus, in the blood of 67 percent of patients suffering from chronic-fatigue syndrome. “There’s no question it’s in the people we found it in,” says Mikovits.»

Les hele artikkelen HER

Les på norsk med Google Translater HER

Punkter fra Judy Mikowits foredrag 17.10 hos NJCFSA

Hentet fra XMRV Global Actions Facebookside:

«I’ll preface this by saying that I had no sleep and I may have gotten some of these points wrong. I also forgot to get a conference booklet with Judy’s slides, so I’m writing from memory. I didn’t stay for the Q&A, so this is just from her lecture.

  • Judy reiterated that there is NO evidence of contamination and highlighted that Bill Switzer’s mtDNA test was used to rule it out as an additional check besides all the other verifications that were done for the Science paper.
  • Evidence that HMRVs are associated with CFS is MUCH stronger than the association with prostate cancer because they have isolated the virus – something none of the prostate cancer studies have done
  • One of the negative studies (Groom et. al) used a method to detect monoclonal antibodies to MLV Env proteins (gifted by Chesebro/Evans). This test recognizes all PMRVs except XMRV. Oops.
  • Frank Ruscetti and Rachel Bagni isolated virus from the Lo/Alter patients (I believe it was those that had a fresh blood draw – the 8 of 9 that retested positive) and what they found was XMRV. THIS IS HUGE!!!
  • Over 70 species of mice were tested by Coffin and none of them contained XMRV. This is clearly a new human retrovirus.
  • Lo/Alter ran the WPI UK samples through their probes and picked up a couple more positives than the WPI found
  • The WPI family studies were elaborated on. Judy showed family trees of a few generations – some have CFS, some Fibro, some lymphomas, ASD, one heart attack (11 yr old boy), some are not infected, some are infected but asymptomatic. Overall, it demonstrated a strong familial link.
  • They’ve found HMRVs in people as young as one years old and as old as 88 years old.
  • Judy estimates prevalence at between 10-20 million Americans infected. I think she said this was based on data from the Blood Working Group.
  • Emphasis on the German study that found XMRV via nasal swabs in immunocompromised patients suggests transmission through respiratory secretions is highly likely. She also mentioned blood, urine, and feces again as probable reservoirs.

Oh, I should mention that there were many of our most beloved in attendance including Hillary Johnson, Annette Whittemore, Marly Silverman, Donnica Moore, and the Cairns family (Peter shot another video of Judy outside before the conference started)

I just remembered another point. The latest negative autism study used Cooperative Diagnostics ‘drop o’ blood on paper’ test. They’ve been trying to get that thing published since last fall and only after the WPI presented their autism poster at the XMRV Workshop did they finally published this ‘crap’ study. Her words, not mine.»

Hør intervju hvor Dr. Mikovits snakker om ME og XMRV

Intervjuet heter «Few Minutes with Milt» featuring Dr. Judy Mikovis» og kan høres HER (Klikk på «listen to podcast»)

Email fra Dr. Judy Mikovits ang XMRV og ME

Hentet fra aboutMECFS.org:

«Regarding the ramifications of being XMRV negative. First of all the current diagnostic testing will define with essentially 100% accuracy XMRV infected patients. The negatives are more difficult as there are additional tests that can only be done in the research lab at this time and not in a clinical setting such as VIPDx. The most important test is to check your blood for an antibody to the virus. If you are positive in the serology test and have an antibody to the virus, you have evidence of infection but at the time your blood was drawn the amount of virus in your blood was below the limit that could be detected by the most sensitive test currently available clinically, which is the the one done at VIPDx. that means while you tested XMRV negative..it could be a false negative.
We are testing the hypothesis that XMRV is to CFS as HIV is to AIDS. There are many people with HIV who don’t have AIDS (because they are getting treatment). But by definition if you have ME you must have XMRV.
I make that analogy in presentations because CFS is such a waste basket diagnosis and testing the hypothesis that XMRV is a major player in ME/CFS like HIV in AIDS, will get treatment and research money into biomedical research for XMRV and end the psychiatric bias that has been the history of the disease. Do I think there is only one XMRV?? Absolutely NOT..there is an HTLV2 and an HIV2 both of which have much milder symptoms associated than the variants HIV-1 and HTLV1? What if the first XMRV to be associated with ME/CFS is not the most pathogenic variant. What if there is a much more pathogenic XMRV-2 out there?? In the UK in China??

Maybe the reason others don’t find it is because they will not do the BIOLOGICAL VIROLOGY and ISOLATE THE VIRUS like the WPI and VIPDx have done. NO ONE else has even ATTEMPTED the experiments in the Science paper. Electron micrographs don’t lie and a budding virus or immune response cannot be a contaminant.

We do stand behind our hypothesis that somehow XMRV is hurting your immune system so that it cannot fight ordinary pathogens and after a long time of chronic expression of XMRV (or a short time if you have other genetic immune deficiencies) your immune system simply cannot function normally and you become permanently disabled…

Please feel free to discuss my response with your group..We will test everyone that tested negative to see if we can find antibodies in your blood and look for that variant that we describe..that is evidence of XMRV infection. There is so much that we don’t know about the virus. Recall that the first isolation of HIV was from a single AIDS patient published in late 1982 and it was not until 2 years later that it was associated with AIDS with the kind of evidence that we put into that first paper. Only a few short years later there were effective therapies. We learned a lot then and we are using every bit of that knowledge from 30 years ago (we were there and have worked on nothing else for 30 years) to understand this human retrovirus. Please don’t hesitate to email me directly if you or anyone in the group has questions/concerns. To be clear..I do think even if you tested negative now that you are likely still infected with XMRV or its closest cousin..

Kind regards,

Judy»

Les på norsk med Google Translater HER

Hele foredraget Judy Mikovits holdt om XMRV 22.01 skriftlig

Nå kan du lese hele foredraget til Dr. Mikovits HER

Oversett til norsk med Google Translater HER

Video av Dr. Mikovits foredrag om XMRV

ProHealth har nå lagt ut 2 videoer av Dr. Judy Mikovits foredrag 22.01.10 om XMRV.

Se de her

NB!!

«Note: These two videos are long, so allow time for the image to reappear after you hit the «play» arrow. Sound quality in the first will improve when Dr.Mikovits starts to speak.»

Oppatering av Q&A session med Dr.Judy Mikovits

22 januar vil Dr. Judy Mikovits svare på spørsmål om XMRV. Dette vil bli direkte sendt på nettet, og du finner oppdaterte opplysninger om hendelsen under. Informasjon om hvor og hvordan du får koblet deg til vil jeg komme nærmere tilbake til.

Hentet fra Prohealth.com:

TIME:
2 to 4 pm Pacific Time, Friday Jan 22
For the date and time of the event where you live, check the World Clock Time Converter – www.timeanddate.com/worldclock/converter.html – and convert from U.S.A. California to your time zone.

SUBMIT YOUR QUESTION TO DR. MIKOVITS NOW
Attendees at the event in Santa Barbara will be able to question Dr. Mikovits directly about XMRV research progress, findings, testing, and plans. But Dr. Mikovits invites all to submit questions now, for her consideration in advance.
To submit a question, click here.

BRIEF BACKGROUND

Dr. Mikovits
As director of research at the Whittemore-Peterson Institute in Reno, Nevada, Judy Mikovits gained worldwide attention in October with publication of a paper in the journal Science, reporting “Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome.” To review the article and subsequent media coverage, see “In The News” at WPInstitute.org.

XMRV Research Continues, Worldwide
Dr. Mikovits’ team at Whittemore-Peterson, and collaborating researchers around the globe, are working intensively on next steps in the research – which relates to ME/CFS, fibromyalgia and other neuroimmune disorders, certain cancers, and much more.